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DTSTART;VALUE=DATE:20251104
DTEND;VALUE=DATE:20251107
DTSTAMP:20260515T035002
CREATED:20250627T101712Z
LAST-MODIFIED:20250627T101712Z
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SUMMARY:2nd Patient Recruitment in Rare Disease Trials
DESCRIPTION:The rare disease trial landscape stands at a pivotal tipping point. While unprecedented advances in trial design\, digital tools\, and regulatory flexibility are accelerating innovation like never before\, the reality for patients remains stark: over 90% of rare diseases still lack an FDA-approved treatment. For many\, clinical trials represent the only path to care\, yet access remains uneven. Geographic isolation\, diagnostic delays\, and socioeconomic barriers continue to exclude many patients\, especially from underserved communities\, from participating in research. \nAdd to this the small\, dispersed patient populations\, high protocol complexity\, and a shortage of disease-specific expertise\, and it’s clear that traditional recruitment approaches no longer suffice. \nNow in its second year\, the Patient Recruitment for Rare Disease Trials Summit stands as the premier forum dedicated to closing this critical gap. Designed for leaders in Patient Recruitment\, Clinical Operations\, Patient Advocacy\, and Medical Affairs this summit unites innovators reshaping rare disease trial access across the entire patient journey. Over three focused days in Boston\, you’ll explore cutting-edge strategies spanning early patient identification to decentralized\, patient-centric trial models that support participants from diagnosis through to long-term retention. Now is the time to accelerate creative recruitment strategies\, deepen early patient engagement\, and harness innovative technologies to ensure no rare disease patient is left behind in the race for transformative therapies. \nYou’ll join 70+ leaders from companies like Biogen\, Takeda\, Teva Pharmaceuticals\, Genentech\, Tenaya Therapeutics\, and Sarepta Therapeutics\, sharing what’s worked – and what hasn’t – when it comes to recruiting\, retaining\, and supporting rare disease patients through clinical trials. \nWhether you’re running a trial for a rare neurological disorder\, launching a global gene therapy study\, or building support programs around ultra-small populations\, the 2nd Patient Recruitment for Rare Disease Trials Summit is your strategic launchpad. \nTo know more visit: https://ter.li/qxs28b
URL:http://www.pharmajournalist.com/event/2nd-patient-recruitment-in-rare-disease-trials/
LOCATION:Revere Hotel Boston Common\, 200 Stuart Street\, Boston\, 02116\, United States
ORGANIZER;CN="Hanson Wade":MAILTO:info@hansonwade.com
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DTSTART;VALUE=DATE:20251104
DTEND;VALUE=DATE:20251107
DTSTAMP:20260515T035002
CREATED:20250916T110442Z
LAST-MODIFIED:20250916T110506Z
UID:41950-1762214400-1762473599@www.pharmajournalist.com
SUMMARY:LEAP HR: Emerging Biopharma
DESCRIPTION:Funding pressures\, regulatory shifts\, global competition\, and relentless layoffs are redefining the pre-commercial biopharma landscape. In this climate\, agile\, transparent\, and people-first leadership is critical to keeping teams engaged\, culture strong\, and organizations moving forward. \nLEAP HR: Emerging Biopharma is the only meeting built for senior HR leaders in this space. Over three days in Boston this November\, you’ll join peers who understand your challenges\, share proven solutions\, and offer the community support you need to navigate disruption\, adapt with resilience\, and do more with less. \nLeave equipped with fresh strategies to strengthen culture\, re-energize your workforce\, and lead through uncertainty with clarity\, community\, and confidence — ready to take on 2026 and beyond. \nLEAP HR: Emerging Biopharma is a high-energy\, high impact\, fully immersive experience. We like to keep things short\, snappy … and dare we say\, fun? Welcome to a new era of conferences – one defined by case-study driven presentations\, an ultra-niche HR life science community and our unique format\, you will never need to attend any other conference. \nLearn more: https://ter.li/o0nb7o
URL:http://www.pharmajournalist.com/event/leap-hr-emerging-biopharma-2025/
LOCATION:Revere Hotel Boston Common\, 200 Stuart Street\, Boston\, 02116\, United States
ORGANIZER;CN="Hanson Wade":MAILTO:leaphr@hansonwade.com
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